Today was another productive day here at CHOA. Elena had a chest x-ray at around 9:00 this morning to check her lungs and to see if it would give the doctors any insight as to why she needs oxygen at night and when she is resting. A BIG praise is that the x-rays were negative for fluid. We are going to work on Elena's cardio and do more deep breathing to try to help open her lungs.
Another BIG praise is that Elena's white count went up from .16 to .17. I know this is not a big difference, but I've seen medals handed out for less. We know that this number has to get a lot higher, but it is a step in the right direction.
Other than that it has pretty much been status quo around here in Rm # 3206. We are focusing on incremental increases in all that we think we can control, like laps and mouthcare etc., and are sticking with the FROG approach for all of the rest and are going to Fully Rely On God!
"Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to Him, and he will make your paths straight." Proverbs 3:5-6