Good Evening from room 3206. Today has been a good day! One that still held all of the yuck that we have been dealing with since we have been here, but one that has also had it's share of "good" times.
It may be that we are establishing some sort of a routine, or that Elena is simply not going to let this leukemia get the best of her ( our money is on the latter ), but we have been seeing little glimpses of our sweet, spunky, silly girl peek out at some of the most needed times. This morning around 4am, during one of her many trips to the bathroom, Elena was grunting/moaning like she is prone to do to clear her throat or as a coping mechanism to help with the pain. When asked if she was ok, she smiled her silly little grin and said she was humming the One Direction song "What Makes You Beautiful". That lit up the room like nothing else could have at that moment.
Later on in the morning, she said that she felt like she was "at one of those old folks homes" because she has had to eat soft food, she needed help to go to the bathroom and she spent a lot of time laying in the bed with oxygen tubes in her nose and drooling. :) Her words, not ours. But they made us smile knowing that she was coping better than we thought she might be.
So even though Elena is dealing with things that no one should have to go through, and she has told the doctors that she can't believe that all kids that have a BMT have to go through this, she is doing it with a sense of humor and some spunk. As we have said before, this girl has substance!
As wonderful as it is to see these things in Elena, we know that we cannot and are not going through this alone. All of the posts to the blog, cards, calls and texts of encouragement are doing exactly what you want them to do; they are encouraging! Not only Elena, but all of us and we can't thank you enough! Keep 'em coming!
Please continue to pray for increased healing and rest and for decreased yuck!
"You, O Lord, keep (her) lamp burning; my God turns (her) darkness into light. With your help (she) can advance against a troop; with my God (she) can scale a wall."