Sunday, July 22, 2012

Day - 3

Last night, sleep seemed to evade us. We stayed up well past midnight and were awake every hour all night long either for medications, IV bag changes, or vitals. A busy night with the timing of things not lining up at all.

After hardly any sleep, Elena woke up early this morning feeling rather blah.  Nothing terribly wrong - just an all over, achy, everything hurts, blah kind of feeling. Her doctors said that feeling this way is normal at this point of her preparatory regimen. Her body has been hit hard. This morning, Elena finished her 24 hour dose of Etoposide, which was immediately followed by Cytoxan.  Her second dose of Cytoxan will be tomorrow morning.

Adding to the blah feeling, the facts - - -
summer is already over for us
we are not together as a family should be and we LOVE to be
(remember Liv is not allowed to visit the BMT unit at all)
no end of summer family fun
Elena can't go outside
no Friday night pizza and movie nights (it's not the same with only two of you)
back-to-school shopping with only one list
there will only be one child in this year's "first day of school" picture
never enough sleep

Praying for much needed rest tonight and continued strength to keep on keeping on.

In Him,
The Tates

“Come to me, all you who are weary and burdened, and I will give you rest."
Matthew 11:28

1 comment:

  1. My son is 9 (precursor T-cell ALL relapse patient) and is on day +16. I want to encourage you! It will be a bit rough and then it gets better pretty quickly once the counts start recovering. Today my son's ANC is 550. Four days ago it was ZERO! I'm praying for you ifrom DC Children's Hospital, Elena!

    Friend of Apryl B's...