As you can clearly see by the lack of blog posts, we are settling in to our new life at home together. This recovery phase is definitely different and a little strange. We are so thankful to be HOME, but Elena's day is far from normal. Things like masks, isolation from visitors, no outings, OCD handwashing, flushing her central line, changing her line dressing, and setting timers to give medications on time around the clock all remind us that we still have a ways to go before we are done.
Some of you have asked why Elena has so many restrictions now that she is home. Basically while Elena is on immune supressing drugs and her body is trying to rebuild and recover, she is especially vulnerable to infections - viral, fungal, and bacterial. These can range from mild to life-threatening. It is critical that we take extra percautions to protect Elena from the germs that are around us all the time in the environment, on food and spread by animals and people. So everything that Elena can't do - go to school, church, stores, movies, resturants, eat anything prepared by anyone other than ourselves, and go outside without a mask, are all things we have to do to protect Elena. While these changes are restricting and can be frustrating at times, they are all things that are necessary for her recovery.
With all that Elena can't do, we are LOVING what we can do! Cooking at home, eating meals together, watching movies, decorating the house for fall, playing games, organizing all of Elena's new craft and scrap booking materials, sleeping in our own beds and more! Even mundane things like taking care of the house and laundry are welcomed after life has been so abnormal for so many weeks!
At Elena's last appointment, they told us she didn’t have to come back to the clinic until Monday, November 5th. So, we will continue to enjoy these days at home.
Thank you for praying and believing!
"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11